Let’s Advance Our Understanding of LQTS Together

Join myQTwave

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FAQs

myQTwave

is a non-interventional, observational study designed to better understand the lives of those diagnosed with LQTS Type 2 or 3 and shape the future of care.

Participants will receive an iPhone and Apple Watch as part of the study.

This study is registered on ClinicalTrials.gov (NCT07075445).

We’re Experiencing High Interest β€” Thank You for Your Support!

We’re grateful for the tremendous response to the myQTwave Non-Interventional Study. As we move through this early beta testing phase and prepare for broader expansion, enrollment may be limited. If a spot is not currently available, you may join our waitlist, and we’ll reach out as soon as additional openings become available.

Thank you for your patience, your interest, and your commitment to advancing research for the Long QT community.

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    Non-Interventional

    You will not be asked to take any medications, undergo procedures, or make changes to your current treatment during the study.

  • Developed with Care

    MyQTwave was developed by cardiologists, psychologists, and people living with Long QT Syndrome Type 2 or Type 3.

  • Make an Impact

    Taking part in this effort means contributing to better care, more awareness, and a stronger voice for the LQTS community.

β€œMyQTwave is founded on the best principles of science and discovery. We want this study to change and direct the future of care for all patients and families dealing with Long QT.”

Dr. Sam Sears portrait

Samuel F. Sears, Jr., PhD, Principal Investigator β€” East Carolina University

  • Your participation provides valuable insight into how LQTS impacts individuals differently, helping researchers develop more personalized care. Your unique experience plays a vital role in shaping the treatments of tomorrow.

  • You may qualify if you:

    • Have a diagnosis of Long QT Syndrome (LQTS) Type 2 or Type 3

    • Are 18 years or older

    • Currently reside in the United States

    • Are comfortable using a smartphone and wearable device

  • This study is sponsored by Thryv Therapeutics Inc., a biotechnology company focused on developing investigational treatments for cardiac conditions, including Long QT Syndrome.

Explore FAQs

What’s Involved?

Contact Us

Reach out to our study team by phone or email to learn more about this remote study. While we can’t provide medical advice, we’re happy to answer any questions related to participation.

Check Your Eligibility

If you decide to take part, you’ll complete a brief eligibility screening and informed consent process β€” all done remotely using secure, digital tools.

Participate on Your Schedule

Complete surveys, ECG recordings, and optional symptom tracking anytime that works for you using the myQTwave app.

arm with Apple watch showing ECG and heart rate

The People Behind myQTwave

The myQTwave study is guided by researchers at East Carolina University who believe every story has the power to drive change in Long QT Syndrome care.

Meet Your Study Team

Ready to take part in myQTwave?

Learn what’s needed to get started and see if the study is a good fit for you.

Check Your Eligibility
Tapping finger on Apple watch with myQTwave logo app on it

Ready to get started?

Reach out to our study team by email or phone to get started with your eligibility screening.


Download the Physician Letter

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